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3.1. Improving the Consent Model
As mentioned in this thesis, biobank research is different from traditional medical…
Therefore, the application of the privacy rules should also use advanced technology.…
Bovensberg, Kattenberg, Baselmans, Sinke, Hoekstra, Boomsma, and Willemsen suggest…
As mentioned in NaKo’s procedures for handling the withdrawal requests, it is clear…
Recital 59 of the GDPR clearly states that modalities should be provided for the…
Bovensberg, Kattenberg, Baselmans, Sinke, Hoekstra, Boomsma, and Willemsen, suggest…
For this dynamic research field, a dynamic form of applying the rules of consent…
Consequently, I agree with the above-mentioned scholars and suggest that the dynamic…
It will allow data to be up-to-date and research participants to be aware of future…
On the other hand, GDPR requires consent to be informed which requires detailed comprehension…
The economic sustainability of the biobanks is an issue that should be highlighted.…
Different clinical and population-based biobanks started to use technology to advance…
CHAPTER 3 - Way Forward
3.2. Establishing an oversight body