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Bibliography
Legislations…
Biobank Act 688/2012…
Directive 2004/23/EC of the European Parliament and of the Council of 31 March…
Regulation EU No. 536/2014…
Ethical Principles and Guidelines…
Article 29 Working Party, Guidelines on Consent under Regulation 2016/679, last…
European Data Protection Board, ‘Guidelines 05/2020 On Consent Under Regulation…
The National Commission for the Protection of Human Subjects of Biomedical and…
The World Medical Association ‘Declaration of Helsinki Medical Research Involving…
Council for International Organisations of Medical Sciences, ‘International Ethical…
Books…
Kosta E, Consent In European Data Protection Law (Nijhoff 2013)…
Manson, Neil and O’Neill, Onora, Rethinking informed consent in bioethics (Cambridge…
Slokenberga S, Tzortzatou O, and Reichel J, GDPR And Biobanking (Springer…
Book Chapters…
Chassang G, Hisbergues M, and Rial-Sebbag E, ‘Striking A Balance Between Personalised…
Hansson M, ‘Striking A Balance Between Personalised Genetics And Privacy Protection…
Nordberg A, ‘Biobank And Biomedical Research: Responsibilities Of Controllers And…
Shabani M, Chassang G, and Marelli L, ‘The Impact Of The GDPR On The Governance…
Staunton C, ‘Individual Rights In Biobank Research Under The GDPR’, GDPR and Biobanking (Springer…
Hoppe N, ‘The Regulation of Biobanking In Germany’, GDPR and Biobanking
Articles…
Bledsoe M, and Sexton K, ‘Ensuring Effective Utilization Of Biospecimens: Design,…
Budin-Ljøsne I and others, ‘Feedback Of Individual Genetic Results To Research…
Caenazzo L, Tozzo P, and Borovecki A, ‘Ethical Governance In Biobanks Linked To…
Chadwick R, and Berg K, ‘Solidarity And Equity: New Ethical Frameworks For Genetic…
Daga S and others, ‘Employing A Systematic Approach To Biobanking And Analyzing…
Dankar F, Gergely M, and Dankar S, ‘Informed Consent In Biomedical Research’ (2019)…
Eric Chwang, ‘Against The Inalienable Right To Withdraw From Research’ (2008) 22…
Gille F, Vayena E, and Blasimme A, ‘Future-Proofing Biobanks’ Governance’ (2020)…
Goisauf M and others, ‘Correction: Data In Question: A Survey Of European Biobank…
Hansson M and others, ‘Should Donors Be Allowed To Give Broad Consent To Future…
Helgesson G, and Johnsson L, ‘The Right To Withdraw Consent To Research On Biobank…
Helgesson G, and Johnsson L, ‘The Right To Withdraw Consent To Research On Biobank…
Holm S, ‘Withdrawing From Research: A Rethink In The Context Of Research Biobanks’…
Indrakusuma R and others, ‘Context-Relative Norms Determine The Appropriate Type…
Jasper Bovenberg and others, ‘Enhancing Biobank Participants’ Rights – From Paper…
Kaye J and others, ‘Dynamic Consent: A Patient Interface For Twenty-First Century…
Kihlbom U, ‘Autonomy And Negatively Informed Consent’ (2008) 34 Journal of Medical…
Marelli L, and Testa G, ‘Scrutinizing The EU General Data Protection Regulation’…
Markman J, and Markman M, ‘Running An Ethical Trial 60 Years After The Nuremberg…
Master Z and others, ‘Biobanks, Consent And Claims Of Consensus’ (2012) 9 Nature…
McConnell T, ‘The Inalienable Right To Withdraw From Research’ (2010) 38 Journal…
Melham K and others, ‘The Evolution Of Withdrawal: Negotiating Research Relationships…
Melham K and others, ‘The Evolution Of Withdrawal: Negotiating Research Relationships…
Mikkelsen R and others, ‘Broad Consent For Biobanks Is Best – Provided It Is Also…
Mikkelsen R and others, ‘Broad Consent For Biobanks Is Best – Provided It Is Also…
Nietfeld J, Sugarman J, and Litton J, ‘The Bio-PIN: A Concept To Improve Biobanking’…
Ploug T, and Holm S, ‘Meta Consent: A Flexible And Autonomous Way Of Obtaining…
Policiuc L and others., ‘The Foundation Of Personalized Medicine Is The Establishment…
Prainsack B, and Buyx A, ‘Solidarity. Reflections On An Emerging Concept In Bioethics.…
Simon C and others, ‘Active Choice But Not Too Active: Public Perspectives On Biobank…
Simon M.C., et al, “Active Choice but Not Too Active: Public Perspectives on Biobank…
Somiari S, and Somiari R, ‘The Future Of Biobanking: A Conceptual Look At How Biobanks…
Spillman M, and Sade R, ‘Clinical Trials Of Xenotransplantation: Waiver Of The…
